This next book was fascinating. Part medical case history, part sociology text with a smattering of anthropology thrown in for good measure. The Spirit Catches You and You Fall Down chronicles one family's journey through America's broken healthcare, immigration and social service systems.
In Western medical parlance, 18-month old Lia Lee has severe epilepsy. Her seizures are often so severe as to require her to need ventilatory support and she often contracts aspiration pneumonia when she inhales stomach contents into her lungs. Her pediatricians in Merced California prescribe the standard anti-seizure medications. Lia continues to have several grand mal seizures a month. It is determined that the little girl's parent's are not giving the proper dose of medication, Lia is removed from their care and made a ward of the State for almost a year. She is returned to her parents. Then a catastrophe strikes.
To Lia's Hmong parents, it's clear that one of their precious daughter's souls has gone missing. They do not speak English and have limited understanding of the doctor's direction as to how they should treat her seizures. They look on her epilepsy as a gift. In their culture, people with epilepsy are often marked as shaman as their seizures bring them closer to the Gods.
This is the story of what happens when two cultures clash in huge ways. It raises questions of cultural sensitivity in medicine, what it means to be a good doctor, a good parent, even shedding new light on the definition of disability. Simply incredible.
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